I am so lucky to have a support network who have been with me over the past few years – my mum and boyfriend, as well as lovely friends from high school, university and the local Green Party. Also the wonderful friends I’ve met through the online M.E community. I recently read a quote – “Those who matter don’t mind, and those who mind don’t matter”. I think this quote is wonderful, because the friends I have now, even if they may not understand exactly what I’m going through (I don’t think anyone can unless they’ve had a severe chronic illness), I still feel accepted and loved for who I am. And that is a wonderful thing to feel, when I have been dismissed and hurt and made to feel like I’m just not trying hard enough and am not good enough, by lots of other people (mostly doctors and psychiatrists who really have no business in “treating” M.E). I still do feel lonely and I think that’s to be expected, because I do not see or interact with anywhere near as many people as I used to every day because I am no longer going into London – over the past year I have been predominantly housebound and for periods mostly bedbound, which is why I am lucky to have a support network around me.
So I’m writing this blog post to explain my illness in a way that makes sense to my friends and those who don’t have much experience of this illness.. I hope it helps for you to understand more about me. Continue reading “One year on: what I would like my friends to know “